Fragile X Syndrome Symposium

About the Fragile X Syndrome Symposium

The Fragile X Syndrome Symposium brings together leading researchers, clinicians, healthcare professionals and individuals with lived experience from Canada and the United States to advance understanding and collaboration in Fragile X Syndrome research and care.

This two-day symposium will focus on current research findings, clinical practices and real-world experiences, with an emphasis on translating research into meaningful outcomes for individuals and families affected by Fragile X Syndrome.

Through expert presentations, panel discussions and interactive sessions, participants will have the opportunity to share knowledge, build partnerships and explore future directions in Fragile X Syndrome research, treatment and advocacy.

Who Should Attend

This symposium is designed for:

• Researchers and scientists specializing in Fragile X syndrome and related conditions

• Clinicians and healthcare professionals involved in diagnosis, treatment and support

• Trainees and early-career professionals in medical and research fields

• Advocates, community leaders and policy stakeholders

• Individuals and family members with lived experience of Fragile X Syndrome

Participants will include representatives from academic institutions, healthcare organizations, research networks and advocacy groups from across Canada and the United States.

Why Attend

By attending, you will:

• Learn about the latest advances in Fragile X Syndrome research and clinical care

• Connect with national and international experts

• Share insights and lived experiences

• Contribute to shaping future research and care initiatives

• Build meaningful professional and community relationships

Program Overview

Join us for a focused and forward-thinking symposium bringing together leading researchers, clinicians, and advocates to advance understanding, research, and care in Fragile X Syndrome (FXS).

DAY 1- MARCH 29

DAY 2- MARCH 30

Subject to Change. 

Confirmed Speakers:

• Emily Osterweil I Associate Professor of Neurology, Harvard Medical School,  HJWRSZ Translational Neuroscience Center, Boston Children’s Hospital
• Evdokia Anagnostou I Vice President of Research and Director, Bloorview Research Institute; Child Neurologist
• François Bolduc I Associate Professor, Faculty of Medicine & Dentistry – Pediatrics Department, University of Alberta; Stollery Children’s Hospital
• Jeannie Lee I Professor of Genetics, Harvard Medical School
• Jeff Gavornik I Adjunct Assistant Professor of Biology, Boston University
• Jennifer Crosbie I Clinical Psychologist & Health Clinician Scientist, Department of Psychiatry; Susan J. Bradley Health Clinician Scientist, SickKids Research Institute
• Karen Kelm I President, Fragile X Canada
• Karun Singh I Senior Scientist, Krembil Research Institute, University Health Network; Associate Professor, Faculty of Medicine, University of Toronto; Adjunct Associate Professor, Department of Psychiatry, McMaster University
• Lisa Prock I Associate Chief, Division of Developmental Medicine; Director, Developmental Medicine Center, Boston Children’s Hospital; Assistant Professor of Pediatrics, Harvard Medical School
• Maya Chopra I Attending Physician, Division of Genetics & Genomics, Boston Children’s Hospital; Assistant Professor of Neurology, Harvard Medical School
• Michael Tranfaglia I Medical Director, Chief Scientific Officer & Co-founder, FRAXA Research Foundation
• Paul Wang I Senior Scientific Director, SFARI Pharmaceutical and Biotech Relations, Simons Foundation
• Ryan Yuen I Senior Scientist, Genetics & Genome Biology, SickKids; Associate Professor, Molecular Genetics, University of Toronto
• Sara Kornfeld-Sylla I FRAXA Postdoctoral Fellow, Picower Institue of Learning and Memory. MIT.
• Sara Mitchell I Director, Brain Medicine Program, University of Toronto; Deputy Chief, Hurvitz Brain Sciences Program, Sunnybrook Health Sciences Centre
• Sarah Lippe I Psychology Department, University of Montreal; Director, Neuroscience of Early Development Lab (NED)
• Wayne Sossin I Professor, Department of Neurology & Neurosurgery; Department of Anatomy & Cell Biology, McGill University

Accomodations

If you are looking to book accommodations, a room block is available at the Chelsea Hotel (33 Gerrard Street West, Toronto) by clicking here. 

You may also call the hotel directly, toll-free at 1-800-CHELSEA (243-5732) or 416-595-1975. They must identify themselves as part of the “Azrieli Foundation room block ” or use Res ID: AZR032826

Presented by the Azrieli Foundation

The Azrieli Foundation has grown to become the largest non-corporate public foundation in Canada, dedicated to strengthening communities and improving people’s lives through strategic and impactful giving in education, research, healthcare and the arts, across Canada and Israel.

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