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AGENDA

Friday, May 2
Saturday, May 3
Sunday, May 4
May 2, 2025 at 1:00 p.m. — May 2, 2025 at 5:00 p.m.
Patient Resource Fair

Discover valuable tools, services, and support. Connect with leading organizations and experts dedicated to improving the lives of those impacted by lung cancer. Whether you're looking for educational materials, wellness resources, or community support, this is your one-stop hub for helpful information.

May 2, 2025 at 1:00 p.m. — May 2, 2025 at 2:00 p.m.
Learning the Basics of a Lung Cancer Diagnosis

A must-attend session for anyone looking to understand the science behind the disease, diagnosis, and major treatment options. Learn the  key terminology and lingo that will make appointments easier to understand.

Andrew Lerner, MD picture
Andrew Lerner, MD
Rasheda Persinger, MSN, AGNP-C, AOCNP picture
Rasheda Persinger, MSN, AGNP-C, AOCNP
May 2, 2025 at 2:05 p.m. — May 2, 2025 at 3:00 p.m.
Navigating the Expected and Unexpected Finances of Lung Cancer

Identify financial barriers standing between a cancer patient and their treatment, such as loss of income, out-of-pocket expenses, and socioeconomic challenges. Gain practical tools and resources to navigate financial obstacles and access needed support.

Jackie Hess, MSW, LSW picture
Jackie Hess, MSW, LSW
May 2, 2025 at 3:00 p.m. — May 2, 2025 at 3:15 p.m.
Break
May 2, 2025 at 3:15 p.m. — May 2, 2025 at 4:00 p.m.
Why Research Matters: How You Can Help Shape the Future of Lung Cancer Treatment and Care

Research has the power to transform treatments and improve care for the lung cancer community. But it doesn't happen without people like you! LUNGevity's Patient-Focused Research team will break down the different types of research you can be a part of and how your voice can make a real impact.

Upal Basu Roy, PhD, MPH picture
Upal Basu Roy, PhD, MPH
Bellinda King-Kallimanis picture
Bellinda King-Kallimanis
Kirsten Glynn picture
Kirsten Glynn
May 2, 2025 at 4:05 p.m. — May 2, 2025 at 5:00 p.m.
Integrative Medicine: Improving the Quality of Life During Lung Cancer Treatment

Gain insight into integrative medicine modalities and how they complement traditional treatments to enhance quality of life. Learn key questions to ask your care team and how to incorporate these approaches into your care.

Kim Lowery Walker, MBA, LCSW picture
Kim Lowery Walker, MBA, LCSW
May 2, 2025 at 6:00 p.m. — May 2, 2025 at 8:00 p.m.
Welcome Dinner & Open House Social

Join us for a relaxed, come-and-go dinner with multiple stations of delicious options.

May 2, 2025 at 7:00 p.m. — May 2, 2025 at 9:00 p.m.
Silent Disco Powered by Silent Events

It's important to have fun even when undergoing treatment for lung cancer. Try something new! A silent disco is a unique activity where people dance to music listened to on wireless headphones. Whether you want to cut up the dance floor or people-watch and chat with friends on the sidelines, we're looking forward to kicking off HOPE Summit by celebrating community and survivorship!

🕺Bonus: Dress up from your favorite disco era!

 

Thank you to Silent Events for helping bring this fun event to HOPE Summit.

 

May 3, 2025 at 7:00 a.m. — May 3, 2025 at 8:45 a.m.
Breakfast
May 3, 2025 at 7:00 a.m. — May 3, 2025 at 7:45 a.m.
Morning Walk

Start your day with fresh air and good company. This relaxed, informal walk is a chance to connect with fellow attendees, take in some movement before the day's sessions, and enjoy a peaceful moment of reflection and community. All paces are welcome. Just bring your walking shoes and a smile!

Katie Ginda picture
Katie Ginda
May 3, 2025 at 8:45 a.m. — May 3, 2025 at 5:00 p.m.
Kid's Haven (Ages 6-18)

Programming provided by Kesem Better Days. Your child will connect, build friendships, and have fun with kids their age navigating similar experiences. Lunch and snacks provided. View FAQs.

May 3, 2025 at 9:00 a.m. — May 3, 2025 at 4:00 p.m.
Patient Resource Fair

Discover valuable tools, services, and support. Connect with leading organizations and experts dedicated to improving the lives of those impacted by lung cancer. Whether you're looking for educational materials, wellness resources, or community support, this is your one-stop hub for helpful information.

May 3, 2025 at 9:00 a.m. — May 3, 2025 at 10:00 a.m.
Breathing Beyond Boundaries: Summiting Everest, One Lung at a Time

Enter the extraordinary world of Sean Swarner: a living legend who’s ranked among history’s most inspiring figures. With multiple world records, he’s the focus in an Emmy-nominated Amazon Film, and sought-after presence on global media platforms like ESPN, CBS, NBC, ABC, FOX, CNN, and beyond. He is the only individual in history to conquer Everest, the highest mountain on all continents, ski to both Poles and complete the Hawaii Ironman Triathlon.

This phenomenal feat unfolded after surviving not one, but two terminal cancers, enduring a dire 14-day prognosis, and emerging from a year-long coma – with one lung.  From the brink of death to breathtaking triumph, Sean’s odyssey unveils the secrets to shattering limitations and defying fears. His magnetic presence has illuminated stages across the globe, leaving an indelible mark on countless souls. His corporate speaking and collaborations have become a compass, guiding millions of lives toward transformation and empowerment.

Now, Sean unveils the tools sculpting his purpose-driven life. His secrets are your gateway to a transformative journey of meaning, passion, significance, and boundless opportunities.

Sean Swarner picture
Sean Swarner
May 3, 2025 at 10:10 a.m. — May 3, 2025 at 11:00 a.m.
Breakout: Important Advances in Treating Early Stage Non-Small Cell Lung Cancer

Learn how the treatment of early stage lung cancer is changing. Learn about new surgical advances, clinical trials, and updates on neo-adjuvant and adjuvant therapy.

Eric K. Singhi, MD picture
Eric K. Singhi, MD
Jinny Suk Ha, MD picture
Jinny Suk Ha, MD
May 3, 2025 at 10:10 a.m. — May 3, 2025 at 11:00 a.m.
Breakout: A New Era in Small Cell Lung Cancer

Explore the latest in small cell lung cancer, from new treatments and clinical trials to advances in radiation therapy. Learn how palliative care and integrative medicine can enhance your care.

Misty Dawn Shields, MD, PhD picture
Misty Dawn Shields, MD, PhD
Aditya Halthore, MD picture
Aditya Halthore, MD
May 3, 2025 at 11:05 a.m. — May 3, 2025 at 12:00 p.m.
Managing Central Nervous System Disease in Lung Cancer

This session is designed to discuss central nervous system disease, including leptomengeal disease (LMD) as well as brain and spinal metastases. Learn about new treatments, advances in radiation therapy, and possible clinical trials.

Jaylon Garrett, MSN, APRN, AGNP-C, OCN picture
Jaylon Garrett, MSN, APRN, AGNP-C, OCN
Carmen Kut, MD, PhD picture
Carmen Kut, MD, PhD
Michelle Hills picture
Michelle Hills
May 3, 2025 at 12:00 p.m. — May 3, 2025 at 2:00 p.m.
Lunch and Rest
May 3, 2025 at 12:45 p.m. — May 3, 2025 at 1:45 p.m.
Caregiver Session: Taking Care of Yourself as Well as Your Loved One

We invite all caregivers to join this session to learn the importance of self care, how to manage your stress and the important aspects of caregiving.

Julie Larson, LCSW picture
Julie Larson, LCSW
May 3, 2025 at 2:00 p.m. — May 3, 2025 at 2:45 p.m.
Breakout: Defining Your Legacy: Estate Planning

Estate planning is essential for every adult over 18 to ensure your health and financial wishes are understood and honored. While it’s natural to feel uneasy about thinking ahead, creating an estate plan allows you to express your values and shape your legacy. This session offers key insights and resources to help you define your legacy with confidence.

Amanda Goodstadt, JD picture
Amanda Goodstadt, JD
May 3, 2025 at 2:00 p.m. — May 3, 2025 at 2:45 p.m.
Breakout: (Women) Mirror, Mirror, Sex?

Explore how a cancer diagnosis changes the way you feel about yourself, your relationship, and intimacy. Navigating these changes can be challenging. Explore ways to improve your relationships, maintain your identity, and increase intimacy while undergoing therapy.

Narjust Florez, MD, FASCO picture
Narjust Florez, MD, FASCO
May 3, 2025 at 2:00 p.m. — May 3, 2025 at 2:45 p.m.
Breakout: (Men) How to Navigate Role Changes, Intimacy, & Relationships While Undergoing Therapy

Navigating intimacy and relationships during a man's cancer journey requires open communication, exploring new ways to connect, and adapting to evolving roles in the relationship. Get tips and resources for how to talk to your partner and your medical team to help you face these challenges together.

Schuyler Cunningham, MSW, LICSW, LCSW-C, LCSW, BCN, BCD picture
Schuyler Cunningham, MSW, LICSW, LCSW-C, LCSW, BCN, BCD
Hope Cunningham, DPT, PRPC picture
Hope Cunningham, DPT, PRPC
May 3, 2025 at 2:45 p.m. — May 3, 2025 at 3:00 p.m.
Break
May 3, 2025 at 3:00 p.m. — May 3, 2025 at 3:50 p.m.
Living Well with Lung Cancer

Explore ways to improve your quality of life, mental and physical well-being while living with lung cancer.

Julie Larson, LCSW picture
Julie Larson, LCSW
May 3, 2025 at 4:00 p.m. — May 3, 2025 at 5:00 p.m.
Oncogene Breakout: ALK

This breakout session is designed to give individuals a chance to connect with patients like themselves. The breakouts are roundtable formatted to give you an opportunity to ask questions about clinical trials, new treatments, side effects, and more that pertain to your type of lung cancer. The breakouts will be led by experts as well as a survivor.

Benjamin Levy, MD picture
Benjamin Levy, MD
Rasheda Persinger, MSN, AGNP-C, AOCNP picture
Rasheda Persinger, MSN, AGNP-C, AOCNP
May 3, 2025 at 4:00 p.m. — May 3, 2025 at 5:00 p.m.
Oncogene Breakout: EGFR

This breakout session is designed to give individuals a chance to connect with patients like themselves. The breakouts are roundtable formatted to give you an opportunity to ask questions about clinical trials, new treatments, side effects, and more that pertain to your type of lung cancer. The breakouts will be led by experts as well as a survivor.

Chul Kim, MD, MPH picture
Chul Kim, MD, MPH
Beth Sandy, MSN, CRNP, FAPO picture
Beth Sandy, MSN, CRNP, FAPO
May 3, 2025 at 4:00 p.m. — May 3, 2025 at 5:00 p.m.
Oncogene Breakout: KRAS

This breakout session is designed to give individuals a chance to connect with patients like themselves. The breakouts are roundtable formatted to give you an opportunity to ask questions about clinical trials, new treatments, side effects, and more that pertain to your type of lung cancer. The breakouts will be led by experts as well as a survivor.

Joshua Reuss, MD picture
Joshua Reuss, MD
Kristen A. Marrone, MD picture
Kristen A. Marrone, MD
May 3, 2025 at 4:00 p.m. — May 3, 2025 at 5:00 p.m.
Oncogene Breakout: Rare Mutations

This breakout session is designed to give individuals a chance to connect with patients like themselves. The breakouts are roundtable formatted to give you an opportunity to ask questions about clinical trials, new treatments, side effects, and more that pertain to your type of lung cancer. The breakouts will be led by experts as well as a survivor.

Ranee Mehra, MD picture
Ranee Mehra, MD
May 3, 2025 at 4:00 p.m. — May 3, 2025 at 5:00 p.m.
Oncogene Breakout: Non-Mutated

This breakout session is designed to give individuals a chance to connect with patients like themselves. The breakouts are roundtable formatted to give you an opportunity to ask questions about clinical trials, new treatments, side effects, and more that pertain to your type of lung cancer. The breakouts will be led by experts as well as a survivor.

Eric K. Singhi, MD picture
Eric K. Singhi, MD
May 3, 2025 at 4:00 p.m. — May 3, 2025 at 5:00 p.m.
Oncogene Breakout: SCLC

This breakout session is designed to give individuals a chance to connect with patients like themselves. The breakouts are roundtable formatted to give you an opportunity to ask questions about clinical trials, new treatments, side effects, and more that pertain to your type of lung cancer. The breakouts will be led by experts as well as a survivor.

Misty Dawn Shields, MD, PhD picture
Misty Dawn Shields, MD, PhD
May 3, 2025 at 5:30 p.m. — May 3, 2025 at 6:00 p.m.
Group Picture
May 3, 2025 at 6:00 p.m. — May 3, 2025 at 7:00 p.m.
Dinner
May 3, 2025 at 7:00 p.m. — May 3, 2025 at 7:30 p.m.
Laughter is the Best Medicine

When Annabelle Gurwitch had her cancerversary, one year in treatment for EGFR-mutated NSCLC, her oncologist told her, "Now is the time to drink the fine wine." But no one offered fine wine. Instead, she was offered a chance to go on a van tour of Europe with a fledgling heavy metal band and work as their merch girl. Now, 4 years in treatment, New York Times bestselling author, former TV host, Annabelle Gurwitch, will entertain us with her hilarious, inspiring, and relatable story of unexpected resiliency.

Annabelle Gurwitch picture
Annabelle Gurwitch
May 3, 2025 at 7:30 p.m. — May 3, 2025 at 9:00 p.m.
Paint & Sip

The white ribbon is a symbol of unity, raising awareness, building community, and reminding us that no one is ever alone. Join The White Ribbon Project for an inspiring evening of painting and signing ribbons, all while enjoying drinks and snacks!

May 3, 2025 at 7:30 p.m. — May 3, 2025 at 8:30 p.m.
Mindful Doodling

Enjoy the power and playfulness of art therapy through mindful doodling and storytelling to access coping styles and celebrate your resilience and aliveness. Limited space available. Sign up to reserve your spot!

Patricia D. Isis, PhD, LMHC-QS, ATR-BC, ATCS picture
Patricia D. Isis, PhD, LMHC-QS, ATR-BC, ATCS
May 3, 2025 at 7:30 p.m. — May 3, 2025 at 9:00 p.m.
Share Your Story Workshop

Learn how to confidently share your story and inspire others with your voice. Limited space available. Sign up to reserve your spot!

Brandon Leonard picture
Brandon Leonard
Annabelle Gurwitch picture
Annabelle Gurwitch
May 3, 2025 at 7:30 p.m. — May 3, 2025 at 8:00 p.m.
Skin Care Class

Cancer treatment side effects often don’t get the attention they deserve, but skin issues can cause serious discomfort and impact a patient’s quality of life. Join Nancy Sutton from La Roche-Posay for an informative session on how to care for your skin during treatment. Limited space available. Sign up to reserve your spot!

May 3, 2025 at 8:15 p.m. — May 3, 2025 at 8:45 p.m.
Skin Care Class

Cancer treatment side effects often don’t get the attention they deserve, but skin issues can cause serious discomfort and impact a patient’s quality of life. Join Nancy Sutton from La Roche-Posay for an informative session on how to care for your skin during treatment. Limited space available. Sign up to reserve your spot!

May 4, 2025 at 7:00 a.m. — May 4, 2025 at 8:30 a.m.
Breakfast
May 4, 2025 at 8:30 a.m. — May 4, 2025 at 9:00 a.m.
Breakout: Managing the Challenges of Parenting Through Lung Cancer

Parenting is challenging on its own, but it becomes even tougher when you're navigating cancer. A compassionate approach can make all the difference in helping your whole family cope. In this session, Cassy Horton from Pickles Group will share valuable resources and practical tips on how to support and include your children during your diagnosis, ensuring they feel cared for and understood every step of the way. Following Cassy, Brandi and Jeff will answer questions from a parent's perspective.

May 4, 2025 at 8:30 a.m. — May 4, 2025 at 9:00 a.m.
Breakout: Solutions for Everyday Finance Management

Cancer treatment can be costly, but with the right strategies, you can manage your everyday finances and avoid unnecessary financial strain. In this session, we’ll explore practical tips to help you manage your budget both before and after receiving care.

Amanda Goodstadt, JD picture
Amanda Goodstadt, JD
May 4, 2025 at 9:05 a.m. — May 4, 2025 at 10:00 a.m.
Ask Your Nursing Experts

Use this session to ask nurse experts all the questions you need answers to. They can talk about side effect management, questions you have for clinical trial participation, and second opinions.  Ask them for tips to make your appointments easier and more informative.

Jaylon Garrett, MSN, APRN, AGNP-C, OCN picture
Jaylon Garrett, MSN, APRN, AGNP-C, OCN
Beth Sandy, MSN, CRNP, FAPO picture
Beth Sandy, MSN, CRNP, FAPO
Jillian Thompson, MSN, ANP-BC, AOCNP picture
Jillian Thompson, MSN, ANP-BC, AOCNP
Rasheda Persinger, MSN, AGNP-C, AOCNP picture
Rasheda Persinger, MSN, AGNP-C, AOCNP
Elizabeth J. Speight CRNA, MHA picture
Elizabeth J. Speight CRNA, MHA
May 4, 2025 at 10:00 a.m. — May 4, 2025 at 11:00 a.m.
Incorporating Palliative Care Can Enhance Your Treatment

Learn more about the benefits of Palliative Care when administered alongside aggressive cancer treatment. This session includes the core components of Palliative Care: symptom management, goals of care conversations, advance care planning, self-determination, and more. You won't want to miss this informative session!

Kathryn Reid, MSN, CRNP, AGPCNP picture
Kathryn Reid, MSN, CRNP, AGPCNP
May 4, 2025 at 11:05 a.m. — May 4, 2025 at 11:30 a.m.
Breakout: Balancing Work and Cancer Care or Caregiving

Juggling work and cancer treatment can be tough, but with the right planning and support, it’s possible to thrive in both areas. This session will equip patients [and caregivers] with expert advice, practical tips, and valuable resources to help you navigate the workplace with confidence and flexibility during your treatment journey.

Scott Sinclair picture
Scott Sinclair
May 4, 2025 at 11:05 a.m. — May 4, 2025 at 11:30 a.m.
Breakout: Workshop a Research Question and be a Researcher!

Come be a researcher! Have you ever had questions about lung cancer treatment or care that you wish researchers would investigate? In this interactive workshop, you will have the opportunity to turn your curioisity into a plan! Together we will take one of the questions participants have and turn it into a research hypothesis. We will also brainstorm how to test the hypothesis using real research methods. No prior experience needed, just your curiosity plus lived experience. This session is being conducted with LUNGevity's Patient Focused Research Team

Upal Basu Roy, PhD, MPH picture
Upal Basu Roy, PhD, MPH
Bellinda King-Kallimanis picture
Bellinda King-Kallimanis
Kirsten Glynn picture
Kirsten Glynn
May 4, 2025 at 11:00 a.m. — May 4, 2025 at 1:00 p.m.
Boxed Lunch
May 4, 2025 at 11:35 a.m. — May 4, 2025 at 12:15 p.m.
Raffle & Closing Session: The Importance of Community Connections Throughout the Year

Community support is vital for cancer patients and caregivers as it provides emotional support, reduces feelings of isolation, offers practical assistance, and fosters a sense of belonging, ultimately improving quality of life and potentially health outcomes. Hear from LUNGevity's Ambassadors how community has made a positive difference in their lives and find out how you can stay connected after HOPE Summit.

Raffle drawing will be announced at the end of the session at Noon.

Frank Sierawski, 10-Year Survivor picture
Frank Sierawski, 10-Year Survivor
Ashley Vassallo, MSW, ASW picture
Ashley Vassallo, MSW, ASW

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